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DARE DREAM DELIVER NURSES CONFERENCE 2023

Fibrodysplasia ossificans progressive – an overview

Dr Careni Spencer

Discussion points:

  • Why are rare diseases important?
  • Patient Journey through diagnosis
  • Quotes from The Diagnostic Odessey
  • Clinical Features of FOP
  • Flare Ups &Triggers
  • Management
  • Treatment Targets
  • About Tin Soldiers

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